International Federation for Spina Bifida and Hydrocephalus (IF)

  1. In a full circle the IF in capitals appear the first in black the second in white

    The International Federation for Spina Bifida and Hydrocephalus (IF) was founded by people with spina bifida and hydrocephalus (SBH) and their families in 1979. Over the years, it has grown from a voluntary association into a professional disabled people’s organisation (DPO) with global coverage, democratic structure and transparent and accountable processes. The International Federation for Spina Bifida and Hydrocephalus holds Special Consultative Status at the Economic and Social Council of the United Nations and Participatory Status at the Council of Europe.

    IF’s fast-growing membership now includes 62 member organisations in Africa, Australia, the Americas, Asia and Europe. Membership of IF is open to all nationally registered organisations that share IF’s vision and mission and actively involve people with SBH in their work.

    The majority of IF member organisations are led and governed by adults with SBH or parents of children with SBH. Children are active participants in our members’ activities: they are involved in child-led activities, training workshops on independence and holiday camps. Nowadays, many young people with SBH have taken over the leadership of their organisations. In most cases, IF members choose close cooperation with medical and education professionals and researchers, given the importance of these professions to children and adults with SBH for their survival and development.

    Website: www.ifglobal.org