European NGO - full member DEBRA International
DEBRA International is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition Epidermolysis Bullosa (EB).Website
Who are they?
DEBRA International is the umbrella organisation of Epidermolysis Bullosa (EB) support groups .
DEBRA Europe was established in 1992 to serve as the central body of an international network made up of DEBRA (and other EB patient support) groups as its members. The organisation subsequently became DEBRA International in 2008 to reflect the ever-increasing international scope of its membership.
With an increasing number of groups sharing common goals and working on common activities, it became clear that more could be achieved working together than each group working alone.
What they do
They foster communication and collaboration with their member groups on international projects across EB research, an EB patient registry, best clinical practice, developing-country support, grants, and DEBRA and EB-related events.
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