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Withdraw Additional Protocol to Oviedo Convention

A brief introduction of Oviedo Convention campaign

The Campaign

The Council of Europe – Europe’s leading human rights organisation, composed of 47 Member States from the European region with the role of upholding human rights, democracy and rule of law – may soon be setting a dangerous precedent that will greatly undermine the rights of persons with disabilities.

The precedent relates to the adoption of a draft additional protocol to the Oviedo Convention. If adopted, this additional protocol will authorize some forms of involuntary placement and treatment of persons with disabilities.

We want this draft to be withdrawn and for Member States to consider other alternatives that comply with the human rights of persons with disabilities. 

Why we are campaigning?

Our motivation

What is the Oviedo Convention and its Additional Protocol?

The Convention on Human Rights and Biomedicine, better known as the Oviedo Convention, is the only international legally binding instrument on the protection of human rights in the biomedical field.  It establishes that human rights must come before other considerations in the field of biomedicine. It lays down a series of principles and prohibitions concerning bioethics, medical research, consent, rights to private life and information, organ transplantation, public debate, etc.

To provide better guidance, a series of additional protocols have been adopted related to specific topics. Examples include Prohibition of Cloning Human BeingsTransplantation of Organs and Tissues of Human Origin, and Genetic Testing for Health Purposes among others. 

What are we campaigning against? 

We are not campaigning against the Oviedo Convention. We are campaign against a proposed draft additional protocol entitled “Draft Additional Protocol concerning the protection of human rights and dignity of persons with mental disorder with regard to involuntary placement and involuntary treatment.” 

Why are we campaigning against it? 

We are highly concerned about this development and strongly oppose the adoption of this draft protocol for the following reasons:​

  • Forced treatment and forced placement of persons with disabilities is prohibited under the UN Convention on the Rights of Persons with Disabilities (CRPD). It breaches, among others, the rights of non-discrimination, legal capacity, liberty and security, and health, enshrined in the Convention of the Rights of Persons with Disabilities. The CRPD is ratified by 46 of 47 Member States of the Council of Europe. 
  • The adoption will create a legal conflict between the obligations of States under the regional level (Council of Europe) and the international level (CRPD). Two different standards will apply in European States that ratified the CRPD. 
  • It risks solidifying institutionalisation of persons with disabilities, while the practice is condemned by the CRPD, the Committee on the Rights of Persons with Disabilities, and the Special Rapporteur on the Rights of Persons with Disabilities.

What has been the response of the Council of Europe?

Despite our efforts to engage with the Council of Europe, our views have not been taken into account. In May 2018, we sent an open letter to the Secretary-General of the Council of Europe to express our disapproval, along with the European of (Ex)-Users and Survivors of Psychiatry, Mental Health Europe, Inclusion Europe, Autism-Europe and the International Disability Alliance.

The Council explained that, as long as Member States do not oppose – more particularly the Council of Ministers representing Member States – the Committee on Bioethics will continue working on the draft and finalise it. The mandate of the Committee on Bioethics to work on the draft protocol was renewed until 2021. 

EDF has continued to advocate against the draft protocol. In September 2020, an open letter was sent to the Committee of Ministers, signed by 15 organisations. 

Who shares our concerns?

Our opposition to the draft is shared by international experts such as the UN Committee on the Rights of Persons with Disabilities, the Special Rapporteur on the rights of persons with disabilities and the Special Rapporteur on the Right to Health. In September 2017, with the Working Group on Arbitrary Detention, they sent a joint letter to the Secretary General of the Council of Europe opposing the draft additional protocol. In 2016, the Parliamentary Assembly of the Council of Europe had already recommended withdrawing the draft

It's your turn!

What can be done to help?

  1. Participate in Twitter #WithdrawOviedo and #StopForcedTreatment campaign
  2. Disseminate our handouts (available in French and English)
  3. Sign our open letter to the Committee of Ministers
  4. Contact your relevant ministries (foreign ministry, health, social affairs, and inclusion), raise the issue, and tell your government why they should oppose the adoption of the draft and ratification of the protocol
  5. Send us updates on the position of their government on the additional protocol and any work organisations of persons with disabilities undertook at this regards

European Disability Card

The Campaign

Previously known as “Mobility Card”, it will facilitate traveling to another Member State for persons with disabilities. This card will allow them to access certain discounts for culture, leisure, sport, and transport under the same conditions as the nationals with disabilities of that country. It would have a harmonised design and be based on mutual recognition of existing cards.

State of play:

The European Commission launched a Project Working Group of interested Member States in 2013. A pilot project has been launched with a call for proposals in 2015; eight Member States (Belgium, Cyprus, Estonia, Finland, Italy, Malta, Romania, and Slovenia) have been awarded the Commission grant and have at least partly implemented the Card by 2018. In 2019, the European Commission started an evaluation of the pilot project and results are expected to be published soon.

Links to national Disability Card websites of participating Member States

More information and contact